Back and Neck Problems

and Back Brace Information

For people with Kniest, SED, and SMD

 

• Information about back care, prevention, and issues specific to people with KSG

• Back and Neck Pain

• Spinal injury links

• Information about back braces and halo casts

Information about back care, issues specific to KSG, and prevention

• http://www.hopkinsmedicine.org/orthopedicsurgery/scoliosis.html A Patient's Guide to Scoliosis written by John's Hopkins Medical Staff. Clearly and simply written, with helpful pictures.
  
  
• Spine and Spinal Cord Problems in Bone Dysplasias by Dr. Richard M. Pauli, M.D., Ph.D. This is a good article for both patients and medical providers. Written in simple English with many examples (1992). http://www.lpo.on.ca/SPINEANDCORD.HTM
  

• Neck Disorders In Little People by Dr. George S. Bassett, M.D. A short introduction to neck problems common to people with skeletal dysplasias (bone growth problems). Written in simple English. :http://www.lpo.on.ca/NECKDISORDERS.HTM

• Little People of America Medical Resource Center page on Back Care
  

• Little People of America Medical Resource Center Scoliosis Links

• http://www.nof.org/ the National Osteoporosis Foundation, a non-profit foundation dedicated to finding a cure for Osteoporosis.
  

Back and Neck Pain

• Search Adaptive Living Page for things to buy to make life easier on your back!.

• http://www.painreliever.com/lowbackpain.html Many products for relieving back pain.

• http://www.vax-d.com/ a web page about alternative care for low-back pain.
  

• KSG Pain Management - tips from parents and kids on managing pain.

Spinal Injury Links

• Comprehensive Injury Information Network: http://www.spinalcord.uab.edu
  

• http://www.spine-health.com/ contains a lot of specialty information about back care, surgery options, and alternative therapies.
  
  
• http://spineuniverse.com/ a site for with articles, links, and information for medical professionals, parents and people with spinal conditions. There is information about pain management, finding a good office chair, anatomy, and information about both surgical and non surgical techniques.
  

• Scoliosis Research Society information about scoliosis: lists of doctors, reference books, and more.
  
  
• http://www.scoliosis-world.com. An excellent site about scoliosis, with many interesting articles and suggestions for exercises. This site keeps with up current literature and posts recent articles.
  
  
• http://www.scoliosis.org/. A good site about scoliosis. Has basic information and an on-line catalog of books, videos, and a scoliometer to measure spinal curvature.
  
  
• http://www.scoliosis-assoc.org/. A helpful site that has information in both Spanish and English. The site also sells videos, has link to a great many other sites, and lists events related to treating scoliosis. A very useful site.
  
  
• http://www.scoi.com/scoilio.htm This website links to doctor groups specializing in scoliosis. It has some good general information.
  

Science Articles about back problems and people with Kniest, SED, and SMD

• Cervical spine disorders in children by Herman MJ, Pizzutillo PD published in Orthop Clin North Am. 1999 Jul;30(3):457-66, ix.

• A journal article about spine/back problems common in people with skeletal dysplasias, Spinal deformity in short-stature syndromes by Tolo VT. Published in Instr Course Lect. 1990;39:399-405: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=2186130&dopt=Abstract

 

Information about back Braces and Halo Casts

• Tips by KSG parents and children about caring for a child in a Halo Cast. Read this page if you child will be in a halo cast.

• Shriner's Hospital Scoliosis Brace Information

• http://www.hopkinsmedicine.org/orthopedicsurgery/bracing.html Johns Hopkins site on back braces.
  

• KSG Pain Management page Tips by parents and children with Kniest and SED to manage pain.
  
  
• Money to pay for health care
  

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